No longer told I’m young

Not told that it’s my weight

Not told that it’s my mental health

She acknowledges my miserable state

Giving so many vials of blood

I hope to find a cure

Or at least some sort of treatment

For the hell that I endure

Waiting waiting waiting

For the next appointment date

Anxious for a diagnosis

To learn about my fate

The doctor could not tell me

What she thinks is wrong

She started me on medicine anyway

My heart sang a joyous song

More tests need done for a diagnosis

But that’s not the most important part

Being given something to make me feel better…

I’ve waited so long to start.

My whole life has been pain

And suffering and woe

I never thought I’d be taken seriously

And misery is all I’d know

But now I have hope

To be free from this strife

To take my freedom for myself

To be able to have a life

My poetry is hella shitty, but I wanted to post this anyway because I’m really happy that my new rheumatologist is taking me seriously and I need everyone to know lol. I’m finally getting treatment for how shitty I feel after trying to get taken seriously for 20 goddamn years. Hoping the treatment works. :)

  • @helvedeshunden
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    17 months ago

    Hope you get an answer you can use. If you’re in the HLA-B27 group, know that there are community organized help forums out there and let me know if you want a link or two :)

    • @LaunchesKayaksOP
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      17 months ago

      Idk if I’m in that group or not. I know that the next tests I am getting are to see if I have lupus and/or some other autoimmune disease.