I got a diagnosis today after trying to figure out what’s wrong with me for twenty years. My grandmother died at a relatively young age of lupus complications and she had to end her whole career at 36 because she was so sick. I’m 27, and I am terrified I’m going to end up like her. Her quality of life was absolutely awful for the entire time I knew her. I don’t want that for myself.
Sorry, I dont have any advice to offer as I dont know much or anything at all about lupus, but I just want to encourage you to keep strong. Ive read a few of the comments from people who seem more experienced, and I get the impression that its very possible to live a fairly normal life as long as you make a few changes to lifestyle. Just keep strong, and surround yourself with supportive, positive people and youll get through it. 🫂