• @[email protected]OPM
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    51 year ago

    Snap! Just the 3 for me, but lupus is vicious enough for two. I switched from oral methotrexate to injections about 10 years ago as the dosage was getting too high. I’ve been on prednisone continuously for 15+ years and boy does it show 😒 we most certainly did not win the genetic lottery!

    • @[email protected]
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      -21 year ago

      One of mine is also lupus. Thankfully it has mostly spared internal organs but it really likes skin and veins in addition to joints in my case, veins being the biggest problem. I also have EDS so the genetic lottery really didn’t like me. I joke with my friends that someone should tell my body that diseases are not Pokemons.

      • @[email protected]OPM
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        21 year ago

        EDS here too! Type 3, but it’s pretty severe. PoTS, sjorgens, fibro, hypothyroidism, NAID etc etc. My lupus loves attacking my kidneys, heart and brain as well as joints, skin and hair, but it’s kinder on the outside than in. I don’t want to look ill, but it is a bit cruel to look pretty healthy on the outside but seriously ill on the inside. I wish you more good days than bad!