Oliver McGowan was 18 years old when he was hospitalized in England with recurrent seizures and pneumonia. He was autistic, and he and his parents had one specific request for the medical team: no antipsychotic medications. When he had taken them in the past, they made his seizures worse and had devastating effects on his mood. Despite the family’s vehement protests, doctors gave him an antipsychotic. A few days later, Oliver suffered a lethal neurological side effect. A week later, he was taken off life support. An inquest into his death found that the drug had led to the rapid deterioration.

After his death in 2016, his mother, Paula, launched a campaign to mandate training on intellectual disability and autism for health care workers. In 2022, the U.K. National Health Service listened. Now, all health care workers in the NHS must complete both an online module and a live interactive session covering communication and accommodations needed for this population. The U.S. needs to follow suit, starting with medical schools.

  • DessertStorms
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    fedilink
    41 year ago

    I am sure about not teaching.
    95% of medical staff I have encountered have absolutely no idea how autism might impact not only communication, but a patient’s needs too.
    Ableism, like sexism and racism are deeply ingrained in to the medical fields, and it’s so fucking frustrating that people, especially those who have no experience of this themselves, brush these kinds of complaints off, or try to minimise them, because “surely not”…
    Maybe just listen?

    • @calypsopub
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      English
      31 year ago

      Most of them have no clue about the physical problems autistics often face, such as autonomic dysregulation. Mine include IBS and tachycardia.