Abstract

Autistic people face a difficult dilemma around whether or not to disclose their diagnosis because autistic people are a stigmatized social group. The central aim of this study was to examine if a social identity approach could be useful in understanding the factors that predict the likelihood of autistic adults disclosing their autism diagnosis in social settings, in the workplace, in educational settings and in the family. The social identity approach predicts that autistic people may cope with this dilemma by using an individualistic strategy to distance themselves from their autistic social identity. Alternatively, they may embrace their autistic social identity and use a collective strategy to resist stigma and advocate for autistic people. We present a survey based cross-sectional study (n = 175) with autistic adults living in Ireland. Participants completed a series of measures; autism social identification, stigma consciousness, and individualistic and collective strategy use to assess disclosing in the four settings. The overall models in each of the four regressions were significant. Autism social identification positively predicted disclosure in social, workplace and educational settings, while stigma consciousness negatively predicted disclosure in the family and in the workplace. Interestingly, over and above these predictors individualistic strategy use negatively predicted disclosure in each of the four settings, while collective strategy use positively predicted disclosure in social, educational and family settings. Our novel social identity approach was useful for explaining autistic adults’ strategies to cope with the complex disclosure dilemma. Strengths, limitations, and directions for future research are discussed.

  • BOMBSOPM
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    English
    59 months ago

    These findings highlight ways in which disclosure is complex and doubled edged. Attention to decreasing stigma and negative stereotypes may decrease individualistic strategy use and increase autism social identification. This is important and may in time, support disclosure of an autism diagnosis, which is linked to making a better first impression (Sasson & Morrison, 2019), a greater chance of being employed (Ohl et al., 2017), access to accommodations (Lindsay et al., 2021) and challenging the way others view autism (Botha et al., 2022). Facilitating the development of positive autistic identity and reducing stigma around autism are two ways in which this may be possible. A social identity approach highlights the continued need for increased awareness and understanding of what it means to be autistic in all areas of society, including in the four settings examined in this study. Autistic people cannot do this work alone, therefore supportive advocates and allies are vital. Methods to reduce stigma around autism could include creating autism friendly spaces, positive media representation, greater education around autism for both the public and professionals, and a cultural shift towards fostering inclusivity and understanding neurodiversity (Turnock et al., 2022).

    I think that this study makes a strong argument for why our efforts in this community to reduce stigma around being autistic and to accept each other in here are important.