In short:

Popular genetic testing company 23andMe is facing bankruptcy and may sell the genetic data of its 15 million customers.

Users have the option to delete their data, but the company can retain it for three years. Data that’s already been sold to researchers may not be able to be deleted.

What’s next?

23andMe’s co-founder and CEO is attempting to buy the company’s remaining shares to take back control.

Then, in 2020, there was a story about US police tracking down a murderer through members of his family who had done at-home genetic testing.

This effectively meant I had dobbed in our entire extended family for past and future crimes.

"The data is now integrated into the research of the big pharma company.

And there’s another problem. There’s a good chance that genetic data stripped of personal information such as name, address and date of birth can be linked back to the individual by combining it with other datasets.

23andMe’s privacy policy also allows the company to sell customers’ genetic data if the company goes bankrupt, is merged or acquired.

In fact, such an event has happened once already.

And unlike passwords, phone numbers, email addresses and many other kinds of personal data, raw DNA data can never be changed.

  • @[email protected]
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    fedilink
    2320 days ago

    To quote a wise man:

    “People just submitted it. I don’t know why they trust me. Dumb fucks.”

  • @NocturnalMorning
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    820 days ago

    Well, there’s only so many people in the world that want DNA testing. I’m surprised it took this long.

  • Noble Shift
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    720 days ago

    This will be bought by an insurance company, or an investment vehicle that owns an insurance company.

    Then come the denials based on … guess what, your most intimate details spilled because your father thought this would be a good idea, and blah blah blah hereditary and so on and so forth ad nauseam.