My daughter was just diagnosed with SLE about a month ago. My mother passed away 7 years ago from it, and my sister has it as well and isn’t doing very well either. If she survives another couple of years I’ll be surprised. It is a horrible thing to go through. I feel so much hurt that my daughter, my own flesh and blood, is going through this. It is one of those things that I cannot really help her to overcome. I feel so powerless. Not looking for advice really, just throwing this out there that there are many people that suffer from this disease. I myself have type 1 diabetes, but it is nothing compared to what you all have to go through. You have my sympathy and I pray that they find a cure to this sometime soon! I hope it is okay if I keep checking on this site for updates, and share them with my daughter if anything applies to her situation.