I wake up, I eat, I read a little, I go back to sleep. I wake up, I eat, I read a little, watch a show with my wife, go back to sleep. I try not to eat more than 1500 calories because my activity level is so low I’ll get fat if I go above that.

What’s the end game here?

EDIT, FOR CLARITY:

I can’t work. I need to sleep like 14 hours a day. I’m exhausted all the time. I get fatigued after about 5 to 10 minutes worth of any labor, including things like going upstairs or loading a dishwasher. My hands shake all the time, to where I can almost not clip my own fingernails anymore.

I work a job for years and retired from it there’s plenty of money coming in. I just find myself in a place now where this chronic, undefined illness has taken over my life.

  • Björn TantauEnglish
    9•2 months ago

    I don’t really know how I handle it. I’m bedridden, leaving it only for my number two. I guess my wife and kids telling me that they love me keeps me going. And sometimes there are funny videos on YouTube.

    Today’s my birthday and one if my friends donating to https://mecfs-research.org/ for me brought me to tears. So I guess I still have hope.