• cynar
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    1 day ago

    Most doctors I’ve spoken to have been quite happy to work with me rather than against me.

    The unfortunate trick is you need to self educate to speak a bit more in their language. You also need to accept they are often working within rules that are unintuitive.

    E.g. I prefer a particular brand drug Vs the generics. (The delivery method was slightly different) I had to cycle through the generics so they could tick them off in the system. Otherwise it would try to automatically shift me to a generic.

      • cynar
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        1 day ago

        I’m guessing you just mouth off at doctors, and so get treated like an idiot.

        • HugeNerd@lemmy.ca
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          1 day ago

          Guess again! I hope you never have to deal with what I deal with, but in a way I do. Suffering is a great teacher.

          • cynar
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            1 day ago

            If you smell dog shit, check the ground. If you constantly smell dog shit, check your shoe.

            Most doctors are trying to help as many people as possible, as quickly as possible. 80-90% are fine to work with you, within their workflow. If every doctor you encounter is in the 10% then either you’re VERY unlucky, or you are the problem element.

            • HugeNerd@lemmy.ca
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              22 hours ago

              I am an atheist, but I am summoning any and all deities or demiurges to visit a disease upon you, hopefully chronic, hopefully painful, hopefully trivially easy to treat, that you have this knowledge, and that every doctor will simply shrug and ignore you.

              This seems to be the only way people learn. It is unfortunate.

              • cynar
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                22 hours ago

                Been there done that. How do you think I learnt to self advocate properly?

                I don’t blame the doctors. They did their best in the time and with the information available to them. I didn’t fit the mould so they missed it again and again.

                I could have done with the right treatment 20 years earlier, but I got there.

                • lad@programming.dev
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                  21 hours ago

                  You might also be male, having health issues while being female seems to have a side effect of not being treated properly much more often. But that’s anecdotal, because I don’t want to search for statistics

                  • cynar
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                    20 hours ago

                    Women definitely have it harder. I’ve seen statistics that back that up too.

                    Women have more variance in their health, mostly linked to their hormonal cycle. That drastically widens the range of ‘normal’ for them as a group. An individual patient might be highly abnormal for herself, but within the bounds of ‘average normal’. A good doctor, with time will account for that. Unfortunately most lack the time.

                    The fact that doctors are traditionally male doesn’t help. Add in a few women overreacting to feed the stereotypes and we end up with the current situation.

                    It seems to be improving slowly, based on what I’ve seen, but it’s still got a long way to go.

        • HugeNerd@lemmy.ca
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          22 hours ago

          You’re a psychopath. An excellent candidate for medical school. Did you apply?