About 2 months ago was when I got my blood patch after my lumbar puncture a week and a half prior.

For a week after my BP I had bad nerve pain in my legs. I was on prednisone for a week after and it helped it subside until now.

So about 2 months after the blood patch my nerve pain in my legs has come back. It took a month and a half after my blood patch for my csf leak symptoms to finally go away.

It’s like I just can’t win. The nerve pain in my legs has come back with a vengeance. It’s the worst when I’m laying down. It’s like someone is trying to rip off my legs from my the soles of my feet to my low back. It’s like a bad stinging pain that you just want to stop because it’s so uncomfortable. Not only that, but it’ll feel like bugs are crawling all over my legs.

It started off small but then has got worse every single day to where I can’t even sit comfortably anymore without nerve pain. Only been a week since it came back and it’s hit hard. My lower back where I got my blood patch has also gotten sensitive and hurts.

Not only that, but just a few days ago I started to get headaches again while standing up. I was like ahh this has to just be a coincidence no way I’m leaking again. Well, it hasn’t stopped. I am also getting nauseas.

Nerve pain is the absolute worst because you know it can grow to absolutely ruin your life and there’s no stopping point for it. I don’t know what to do anymore. I’m obviously going to talk to my doctors but like Jesus Christ. I can’t deal with damage from my lumbar puncture and blood patch.

What I don’t understand is that gabapentin doesn’t help this nerve pain at all, but my Hydrocodone does. Gabapentin helps my other nerve pain but does zip for this. I don’t know why Hydrocodone would help this situation. Ahhhhhhh I just want to scream it’s never ending

  • AFK BRB Chocolate
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    21 year ago

    I’m sorry you’re going through that. For sure seeing a specialist is the thing to do - I hope they can diagnose and resolve it.

    I’d it possible that the pain gabapentin helps is neuropathic and this new pain isn’t?

    • @SpezCanLigmaBallsOPM
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      21 year ago

      It’s weird because it’s 100% nerve pain but it’s like the origin of it whether it’s inflammation or something else is helped by the hydro. If it was straight neuropathic like my other stuff the gabapentin would help but it just doesn’t. It’s so weird. Not sure what the exact cause is that it would be helped by opiates

      • AFK BRB Chocolate
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        21 year ago

        Well, I hope you find the answer, I know how frustrating it is to have pain and not know why. Good luck!