Police in Moscow arrested Yekaterinburg resident Dmitry Bakhtin on Monday after he staged a one-man protest on Red Square in an effort to convince the Russian authorities to provide lifesaving medication to his three-year-old son, according to the news outlet Sota. A journalist from Sota who was covering the protest was arrested as well.
Bakhtin has been arrested multiple times in the past for protesting, including on Red Square. Bakhtin’s son, Misha, suffers from spinal muscular atrophy (SMA), and the medication he requires, risdiplam, is one of the most expensive medications in the world. Bakhtin has previously said that a year’s worth of the medicine costs 14 million rubles (about $140,000).
This is my nightmare. To watch someone you love die because you’re just yourself and the machine has no empathy nor want to understand that this person is your world. This is my nightmare.
Things like this are definitely stopping me from having kids.
I have a disabled partner that we struggled to get medication for. I guess what I’m saying is even if you have no kids this world well find a way make you bitter.