One of the best things that I’ve invested in is large ice packs and large heat packs. The ice pack is wonderful when you are in the bathroom and getting the lovely sweaty hot-flashes / nausea / fainting feelings. I also keep a small fan in the bathroom to help when you are getting one of the hot-flashes.
The heat packs are wonderful for recovery afterwards. having one for you abdomen, and one for you back.
Does anyone else have any neat ideas?
I don’t have any neat ideas, only the advice that finally helped me; take a break before your body makes you.
I learned to switch off from the stress of life and have avoided admission since 2018 so that’s a fucking winner.
I need to be better with taking time off when I need it. I tried to take a mental health day a couple of weeks ago, and I got a work emergency halfway through.
If you haven’t gotten approved for intermittent FMLA (in the USA), you should. It won’t stop you from using all of your PTO, but it’ll keep you from being fired.
My top strategy thus far has been weekly ER visits and monthly hospital admissions for transfusions and high dose steroids.
Some or later they may get insurance to start covering some effective meds, but until then… 🤷🏼♂️
