• @SoleInvictus
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    9 months ago

    Sorry to play armchair doctor, but has she tried budesonide? I ask because a friend of mine has/had very similar symptoms. He was diagnosed with microscopic colitis but it was actually mast cell related. Doctors are still trying to figure out what mast cell disorder it is, but the leading theory is the other medication was causing his mast cells to degranulate, whereas budesonide inhibits degranulation.

    As someone who also has a mystery mast cell issue (go MCAS!), my mast cells going pop makes me really loopy, sometimes to the point of incoherence.

    • @thantik
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      9 months ago

      That’s one of the ones we eliminated that we thought may have been producing the reaction. We’re unwilling to even begin trying to mess with that again, as she would be a VERY big handful during these events. I don’t know if it’s an interaction between budesonide, and dicyclomine or what (or if she was even on them at the same time, or separate times, etc) - but there were a handful of medications that we had her stop, and the events stopped. None of her medications should have produced the effects that we had seen. Nevertheless, cops arrested her for DUI, instead of sending her to the emergency room. :[