For mainstream news about long covid and ME see here

  • themeatbridge
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    124 months ago

    Lightning Process founder, Dr Phil Parker, who’s not a medical doctor but has a PhD in psychology of health, told us his course was “not a mindset or positive thinking approach,” but one that uses “the brain to influence physiological changes”, backed by peer-reviewed evidence.

    The coach on the course we attended said “thoughts about your symptoms, your worry about whether it’s ever going to go - that’s what keeps the neurology going.”

    So in other words, a charletain is selling a fake cure to a real disease.

    • @mecfsOP
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      74 months ago

      Been going on for years before Long Covid with ME/CFS. I guess this greedy buffoon saw long covid and thought he could exploit some more patients.

  • @givesomefucks
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    04 months ago

    Lightning Process founder, Dr Phil Parker, who’s not a medical doctor but has a PhD in psychology of health, told us his course was “not a mindset or positive thinking approach,” but one that uses “the brain to influence physiological changes”, backed by peer-reviewed evidence.

    Seems like a combo of placebo effect, and people not really even knowing if they had long COVID to begin with…

    Like, if this was some bullshit going around social media, whatever.

    But they’re charging gullible people $1,000 pounds (kilograms? Portraits of old white people maintaining an outdated feudal system of government?) for this shit. And telling them to ignore physical treatment.

    And that makes it predatory snake oil.

    There’s nothing wrong trying to game the placebo effect, even if you’re aware it might be a placebo, our brains are optimists and really don’t care. So there’s no hit to effectiveness.

    What’s always been crazy to me is the nocebo effect.

    Like, if I give you a milkshake, and after you drink half I tell you it ha ipecac in and now you have to throw up, you have a pretty good chance of feeling sick and throwing up. But if I told you about the nice o effect while you drank it, your body wouldn’t fall for it.

    It’s always been crazy to me that awareness of the effect only changes the negative result and not the positive

    • @mecfsOP
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      34 months ago

      Since a decent chunk of people with Long Covid recover within the first year (before it becomes chronic), they often try to find out “what” made them recover, even though studies point to the fact these recoveries are natural. So if they did the lightning scamprocess thingy, they’ll blame that for their recovery.

      Same thing as when some people with ME claimed acupuncture “cured them” or that they got better by praying to god.

      • @givesomefucks
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        -24 months ago

        ME claimed acupuncture

        Chronic fatigue?

        Acupuncture does have legit neurological benefits tho…

        A good chunk of benefits would be placebo, but we don’t really understand chronic fatigue to begin with. And acupuncture does have an effect on local nerves, the nervous system, and our brain.

        That was just a weird abbreviation and weird you went on a rant about acupuncture…

        https://www.nccih.nih.gov/health/acupuncture-what-you-need-to-know

        Like, it sounds like your mad people are getting relief from a condition we don’t understand, from a treatment we don’t understand…

        We just know it works above the rates of placebo and that it has a real effect on the nervous system.

        If that makes you angry, don’t read up on how anesthesia works, especially before you have to be out under

        • @mecfsOP
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          4 months ago

          ME and chronic fatigue are far from the same.

          ME is a neuroimmune disease with recovery rates in the 5%, it does have the symptom of chronic fatigue though.

          Acupuncture can help revlieve stress and actually had tangible benefits especially if the patient is suffering from parasympathetic underactivation. However, multiple randomised clinical trials have shown it to not have any lasting benefit for people with ME.

          I’m not sure why you said it sounds like I’m mad, I’m just pointing out flaws in subjective understanding of causality which lead some people to claim they recovered from the Lightning Process.

          • @givesomefucks
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            4 months ago

            ME and chronic fatigue are far from the same.

            Not according to the internet, Wikipedia, or science…

            https://en.m.wikipedia.org/wiki/Myalgic_encephalomyelitis/chronic_fatigue_syndrome

            Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a serious long-term illness. People with ME/CFS experience a profound fatigue that does not go away with rest, sleep issues and problems with memory or concentration. They are able to do much less than before they became ill. Further common symptoms include dizziness, nausea and pain.[3] The hallmark symptom is a worsening of the illness hours to days after minor physical or mental activity. This “crash” can last hours to several months.[10]

            But I’m still guessing what your abbreviation means because you won’t just say it, and I’ve ran out of all patience with you.

            You should still clarify what the fuck you’re talking about tho in case someone with more patience than me wants to try to help you.

            Edit:

            I just realized your account name is mecfs…

            If they’re so different why did you combine them to make a username?

            At least that explains why you acting like this, it didn’t work for you so you think it can’t work for anyone.

            You need to believe more in science just like the people falling for the grift in your article

            • @mecfsOP
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              4 months ago

              could you imagine that “chronic fatigue” and “chronic fatigue syndrome” are not the same?

              The wikipedia page you sent me literally says: “Not to be confused with chronic fatigue, a symptom experienced in many chronic illnesses”

              At the top in italics…

              Like chill man I never insulted you but you continue to insult me without checking things out.

              I personally study ME/CFS and Long Covid…